no choice but to give up my job due to illness

[Julie]

I suffer from migraines as does my mum. Wipes us out for days on end. My youngest daughter suffered from abdominal migraines from the age of 4 and that was really scary!!! She still has the attacks now at 23yrs old.

We all also have excrutiating pain over the right eyebrow...unless you experience it, its hard to describe.

[Skippy]

I suffer from migraines so I can definitely sympathise. I went to the doctors and they gave me stronger painkillers which actually made it worse, which apparently it a side effect!

Phil and Tully, I hope the medication can be sorted out and you get some relief xxx

[phil732]

Hi Julie

I know headaches are awful, cluster headaches are 10 times worse than migranes, my right eye closes and goes bright red and drips, my nose drips also and I cant keep still with the pain, it wakes me up from my sleep everynight and I have to inject and use oxygen. I was desperate for help a few months ago but now I have it my neurologist in London is fantastic I had an injection in the back on my neck last month and that helped for a few days but its only temporary, the next step in alot worse, back there in April, not looking forward to it.

[Skippy]

I'm sorry to hear that Phil. I hope that the treatment you have in April helps you xxx

[phil732]

Thanks Skippy

Im managing to hold on thanks having the treatment I desperatly need, just concerned about Tully, as they are not alone with this disease.

[Julie]

Phil, I can only sympathise...a migraine attack for me starts off with incessant yawning followed by pain like you can't describe and complete eye closure for 4 days at least without sleep...then at least 3 days total wipeout to recover. This is identical to what my mum has suffered for over 60 years...

In between these attacks we have excrutiating eye pain over the right eye brow which means we have to lie down and life really stops.!
I've also had bells palsy twice!!

Just hope daughter doesn't inherit it....her abdominal migraines are so painful and 100 times worse than any headache.

[kallis3]

Hubby used to suffer with migraine, so I've seen how it can affect people.

I'm so glad I don't get anything like that.

I can sympathise with anyone who does.

[phil732]

Hi Julie

how often do you get these attacks? are they at certain times of the year? are you on any medication? Phil

[Julie]

No pattern Phil.....we've all been "observed" and confirmed its in the genes!! I can have 3 within 2 months and then go 3 months free, other times they roll into one. You just deal with it.

Daughter takes tablets to control attacks, but it doesn't always stop them.

I wasn't aware of abdominal migraines until she had them and I wouldn't wish them on my worse enemy.

[phil732]

Kallis

I wouldnt want anyone to suffer cluster headaches, I felt I was alone as the docs here couldnt find out what was wrong with me.When I went to London the 1st time it was as if a huge weight had been lifted off my shoulders they were utterly fantastic. I know I will goto bed tonight and I will be waken in an hour or so, thats the way it is, thankfully Im fine during the day so I manage to have a nap as Im so drained. Just hope my IVA is ok my IP knows all about my condition and I have sent them all my appointments, meds, diagnosis, ect. Though it is costing me a fortune to travel to London its well worth it.

[kallis3]

I wish they could sort it out for you Phil. Glad that whoever you see in London is obviously helping.

Your health comes first and I'm sure your IP realises this.

[phil732]

Ok peeps Im off to bed now though I dont look forward to it, anyway if you speak to Tully please tell them I was asking about them and to contact me if I can help any further.

Thanks for all your kind comments of support as well

speak soon, take care
Phil

[phil732]

Hi
Received a letter from my neurologist in London today saying I need to start a new course of treatment that may cause heart attacks, also they want to monitor my heart so I need ECH's every 2 weeks at my local hospital, quite scarey really, but if it stops the pain all well and good. I have emailed the letter to my IP today. Feeling a bit down as I wonder when this will ever stop, I had 4 attacks last night and my leg is very sore with the injections.

[kallis3]

That does sound scary Phil! I hope it goes ok.

[phil732]

The countdown to my creditors meeting is fast approaching. I am passed myself with worry, I am so stressed this is becoming to way much, as well as my iva I have a battle to start with the dla I have to attend a tribunal with my soliciator next month, also I am on new medication which has negative affects as Im always tired and have mede me extremely depressed, my consultant in London who I saw again yesterday is being fully supportive which is appreciated but I just dont feel with it, now the dates getting closer I feel more anxious the documentation my ip sent me stated a short fall of 4.5k, I have paid into my iva 13.5k I hope they do take this as paid to date it would help me in fighting my disability and then fight the next battle.